Went for my lymphedema massage assessment the other day. Wednesday. This was driven by my ankle surgery. My edema causes too much swelling for my surgically debrided tendon to fully heal. In their assessment, the sharp young Anastasia declared I had “secondary lymphedema stage 2” because my swelling wasn’t going down overnight. In her notes, she wrote, “Patient currently lacks the knowledge and ability to independently manage current symptoms for this chronic progressive condition.”
Well, WTF. I was insulted. And pissed.
Which was the kick in the ass I needed. I commenced wearing my compression socks almost 24/7. Rested on my back with legs elevated three times a day for twenty minutes at a time yesterday. Increased my exercise and took up the intensity. And increased hydration yet more.
It paid off. This morning, the swelling in my feet, ankles, and calves had dropped. My legs, ankles and feet all had re-assumed their normal size and shape. Sure, it’s temporary, because, as I go through the day, the swelling will commence. I’m wearing my compression socks, though. And, I’ll need to continue to deeply hydrate, elevate my legs, and exercise.
“Lacks knowledge and ability to independently manage current symptoms.” Hah. I’ll show them. I begin my Complex decongestive therapy (CDT) next month. Monday, Wednesday, Friday for four weeks. Two things to cheer: the service is available to me and my insurance covers it.
Here we go.
I think we’re all guilty of assuming we can manage our aches, pains, and illnesses on our own (at least in some instances). Unfortunately, we often discover that we’re not as smart as we think we are. 😮
Glad things are moving in the right direction. Keep it up!!
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Hey, I resemble that remark. Thanks for the encouragement, Nan. Cheers, M
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Sorry, i am late! I wish you and yours a happy and blessed New Year! I am sorry for your illness, and hope you will be fully recovered soon! Best wishes, Michael
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Thank you, Michael, it’s very appreciated. Cheers, my friend. M
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I would have been insulted too 🙂 I’m glad the insult prompted you to take better care of yourself.
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Thank you for the support and encouragement. Cheers
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An APRN explained such notes to me when I asked her WTH after a note that she’d encouraged me to intake at least 8 8-ounce servings of clear fluids every day, when I’d reported I was getting between 9-12 per day. She said they’re required to not only account for their time with a patient by writing such notes, but also to assure their company that they’re informing their patients. She said to not pay attention to those aspects of the notes. She was quite nice, and we used to chatter while she did her exam stuff. She never had to tell me to up water intake, and she knew it! But she had to write something, and it couldn’t reflect against her. Your practitioner likely has to do the same. So now, though, you’ll kick edema’s so-and-so!!
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Hey Ali, some variation of your explanation did cross my mind as I read the notes. I figured that it COULD be that she put that in there in order to sell them on the idea that I’m an enfeebled fellow doomed to a quick death if she didn’t intervene and save me. Now I’m exaggerating but, yes, I thought that this could be one for the bureaucracy. Cheers, M
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Yeah, my intent was to soothe, and after I got off the puter and went to bed, I felt bad about writing anything. I’m thankful I did no damage.
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Hey Ali, I liked your comment. It validated some of my insights, and I appreciate that. Cheers, M
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My oncologist said I was unlikely to get lymphoedema after my mastectomy and lymph node removal. Smugly all was well till two years later I noticed my wrist was puffy! Off to the lymphoedema clinic where the nurse was very helpful and my pressure sleeves ordered. Two free on the NHS every six months, but the bottom line is you can’t cure, only manage and the only person who can do that is me. I know a lot more about our lymphatic system now. It can’t be pumped round like our blood, only movement makes it work in all of us.mPressure garments make your muscles work harder so my wellness Pilates, health circuits and Zumba, as well as housework and gardening should help in addition to the ‘manual drainage’ every evening. And we have to do these things forever! Good luck with your legs.
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Thanks for sharing your story and insights. Always useful to know what others experienced and how they deal. Tough road that you’ve gone through. Glad you’re here to write about it. Medicare has a similar take on the pressure socks. Authorized three per foot. *smile*
Cheers
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