Medical Update

Received my biopsy results the other day and saw my urologist today.

The TURBT procedure seemed to get all of the cancer. Didn’t get into the muscle tissue, blood, or connective tissue.

That’s all good news.

My bladder seems to be healing well, based on observations. No pain, clearer urine.

The next steps begin in August, maybe September. After my bladder has healed from its surgery, we’ll begin a series of BCG washes. This is an instillation of tuberculosis bacilli into the bladder. This trains the immune system to attack the disease. It then also attacks any cancer cells which dare to show. I’ll go through that once a week for four to six weeks. There’s a less than 1% chance that I’ll develop TB from it.

CT scans with contrast will follow after the BCG wash protocol to see what shows in my bladder. Cystoscopy if or as necessary to see what’s in there. Three-year follow up program of checking and washes.

First steps have been taken. While it’s all positive to date, it won’t be done for a while. Meanwhile, I’m energetic. In good spirits. Overweight — got to eat less and exercise more, but I can’t exercise properly for two more weeks — but optimistic.

Thanks for all the support. I’ll try to reciprocate to the best I can.

Cheers

A Gun & Zombie Dream

My wife and I and others were being chased by zombies. Fighting them off, we’d taken refuge in a large building. Seemed like some manner of old mansion, maybe. Don’t know.

During the fight, I’d managed to arm myself with two weapons. One was a large but old revolver. Basically, a six-shooter. The other was a modern 9mm handgun, black and cold.

I kept one in each hand as I met the new people, survivors like us. It was chaotic. I was edgy, tense, a little angry. People seemed to be doing stupid things, leaving doors and windows open. I kept going around, closing these things, looking for food, telling others to be careful.

They didn’t seem to be responding well to my comments. They weren’t angry or anything but seemingly oblivious. As I processed that, I concluded that I needed to establish a safe little place for me and my wife in that larger area, and went up some wooden stairs in such of such a place.

I kept my weapons with me. At one point, though, talking with another, I noticed that the revolver had some pink material. Opening the cylinder, I found that each round had the striking end covered in a bright pink wad of cloth, a safety thing I concluded, with some alarm. If I’d tried using that weapon, it probably wouldn’t have fired.

Meanwhile, I wondered, was the 9mm okay, or did it have something like that? But I’d seen the magazine and I thought I’d fired it once without problem, so I thought it was okay.

The dream ended with me trying to remove the pink wadding from the revolving.

Sunday’s Wandering Thoughts

I did my ‘first of the month’ chores the other day. These include pouring things down into the bathtub to keep the sewer lines cleared, and running cleaners through the washing machine, dishwasher, and garbage disposal. We hunt for organic, safe things to do this with. I do them every month on the first day to keep it all working well.

That’s the dream, anyway.

All transpired as planned with everything except the washing machine. It stopped, showing an error message.

My wife pointed it out to me by asking, “What’s this mean?”

“What?”

“The washing machine isn’t doing anything. It shows ‘rL’ where it usually shows the time.”

I looked. Not because I didn’t believe her. It’s just habit: see for myself. Helps me shift into ‘maybe I can fix it’ mode.

She was right about what it said. The time is always in green. These letters were in red.

“That’s not good,” I wisely noted.

We pulled out the manual and found the error message. It’s specifically for the cleaning cycle and means, ‘something is in the washer’. Nothing is supposed to be in the washer during this process. The only thing in it is the tablet purchased for the purpose.

My wife and I talked about it. “This is what we used before,” we agreed. “It was never upset before.”

Shrugging, I took the standard modern technology route: turn it off, turn it back on.

And it worked.

Thursday’s Wandering Thoughts

Temperature is such a funny animal. 72 degrees inside in the winter and we sigh with comfort. So warm! How nice.

72 F inside in the summer — “Brrr, it feels a little chilly,” my wife complains.

Looking askance, I smile and move, catlike to a pool of sunshine streaming in through the window.

Saturday’s Wandering Thoughts

A physical therapist showed up at my sister’s house. My sister — a physical therapist — was surprised, because the therapist was there for Mom.

Sis explained that Mom was living at Heritage Grove now. The therapist replied, “This is the address I have for her.”

Mom’s been at HG since late February.

It’s one of those things that make you go, hmmmmmm, and wonder about record-keeping.

Post-Op Update

TL/DR: My bladder cancer surgery went well yesterday. Two tumors were removed. I’m at home in recovery and awaiting biopsy results. We don’t know when they’ll be in.

The longer version…

I’m standing up to type. I have an 18 French Foley catheter in me. It’s inflated with saline solution.

Sitting is hugely uncomfortable. Taking a few drugs for that but whenever I sit, an enormous urgent need to pee wells up and doesn’t end, even as I see urine going down into my collection bag.

All went great yesterday. First, just as we were leaving the house, the surgery called and asked if we could hurry in. If we could, my surgery would be moved up by an hour. Yes! Let’s go.

I head to the Self Check-in Kiosk. A young volunteer rushes over to help me. She’ll type for me. Okay. I read faster than her, so I answer before she finishes asking. We zip through.

My wife and I laugh about this whole process. Weird to have a self-check in that isn’t a self-check in. We’re sent over to another area. This is where my wife gets her information about waiting for me. We go into the waiting area. We’re only there for three minutes before Sophia arrives to take us back.

She confirms my name and birth and gives me my wrist band, asking me to confirm it’s right. I strip down and answer Sophia’s questions. Bowel movements, eating, drinking, then she left. Another nurse came in, Sarah, and asked questions, verified information, checked my BP and pulse, and put inflation leggings on my calves. I wondered to them, when will we get Tricorders? She laughs.

Everyone always looks at my wrist band and ask me to say why I was at the hospital – *TURBT* — Transurethral Resection Bladder Tumor with Gemcitabine bladder instillation — name, and birthday. Did I do the Hibiclens shower the night before? Under Sarah’s guidance, I wash with more wipes, get into my gown and the bed. BP and pulse taken, IV port installed. Then…waited.

My anesthesiologist, huge, grinning guy, came in with his questions and explanations. It’s a three-minute drill.

My surgeon comes in. She looks like a little blue and raspberry Samurai warrior in her surgery garb.

Another nurse came in, Sarah. She was wheeling me to the operating room. During the ride, I mentioned that she was my second Sarah of the day. “Yes, it was a popular name during the eighties,” she says.

I reply, “Yes, Michael was popular when I was born.”

Sarah answers, “I was going to be Michael. They thought I was going to be a boy.”

“Were you named after a specific Sarah?”

“No, my brother picked my name. He said he would only play with me if I was named Sarah.”

We arrived at the surgery and introduced to more team. Slid myself from the bed to the operating table. Ugh. Much less comfortable. “There’s a hole in the table,” Chris says as I move. “Aim your rearend for that hole.”

Alrighty.

Monitors were attached. The anesthesiologist said, “I’m administering your anesthesia now. Deep breaths.”

Three deep breaths later, I was gone.

Awakening, I think, oh my God, I have to pee. I’m scrambling to get out of bed. Except there’s a bar in my way.

A nurse grabbed me on the other side. “Whoa, whoa, whoa. Go back to sleep.” She pushed me back down. I remembered, oh, yeah. I’m at the hospital. Man, do I have to pee, though.

I’m in the recovery area. Looking around. “How long am I going to be here?” I ask the nurse. She glances at the clock on my monitor. “Another twenty minutes.” I checked the time so I can track it myself.

Other recoverees are wheeled in. We’re half-surrounded by curtains and equipment but I can see three. I can’t see Grace, but Grace doesn’t hear well, so I hear everything that they’re telling Grace.

I’m in space 18. The guy in 19 is awake. I wave at him. He seems to be looking at me. I wave again. He waves back. I smile, give a thumbs up. He does the same, then lays back and closes his eyes. They wheel him back out ten minutes later.

A new woman is wheeled into 17. Her bare shoulders and upper chest are exposed. I wonder what’s going on with her. A nurse or tech wheels in an x-ray machine and tells her that she needs to get some shots. I expect the curtains to be pulled. They’re not. I look away, trying to give 17 some privacy. She’s wheeled out a little later.

I check the time. Still ten minutes left. Man, recovery time is going so slowly. Classic first-world complaint.

Sarah the second returns to wheel me back to my room. “How long have you been doing this, Sarah?” I ask.

“Three years.”

I nod. She’s a vet.

She maneuvers me back into my original little room SUU 3. Paula, another nurse, comes in to begin my post-op care instructions. She asks if I have anyone with me. “Yes, my wife.” Paula goes out and has someone go find my wife in the waiting area.

Fifteen minutes later, I’m dressing. Absorbing instructions. My penis is attached to my groin’s right side via a tube stuck on my thigh so the tube and collecting bag can go on my right, because that’s how I get out of bed, on the right side. It’s a bummer because I hang to the left. Sorry if that’s TMI.

I’m given mesh underwear to put on. A pad is thrust in there to absorb bleeding, and there is bleeding. Then I dress.

Paula explains how to use the catheter. I’m familiar with it. The one difference this time is that I was given chemo. Gemcitabine was instilled. It’ll take 48 hours to flush. I’m instructed to flush twice after emptying the bag, and to be very careful because of the gemcitabine.

Four medicines have been prescribed for pain, the urge to pee, and stool softeners.

I later read two tumors removed. Largest was a posterior papillary bladder tumor measuring 2cm x 3cm.

We’re back home by 4 PM. I have a light lunch, then read and nap for several hours.

It often burned when I urinated last night and this morning. That’s faded a lot, thank dog.

Per Paula’s instructions, I showered last night. My penis tip was caked with drying blood, and pubic hairs were trapped in it. Once that was washed off, a lot of discomfort went away.

I’m due to remove the Foley catheter on Monday. Get in the shower, cut a valve off, let the saline drain, jerk the catheter out.

It’s good to have something to look forward to.

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